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CHS Research News
Volume 15, Issue 1
Winter 2003

 

 

 

Feature Article

The Birnbaum nominees:
Group Health teams help translate research into practice

By Katie Saunders

The setting was the downtown Seattle Sheraton Hotel, the occasion was the third Annual Hilde and Bill Birnbaum Endowed Lecture, and the scene was reminiscent of the Academy Awards. Group Health Center for Health Studies Associate Director Dan Cherkin, PhD, opened an envelope and announced the winners of the Birnbaum Award—the nurses of Group Health’s Breast Cancer Screening Program. This award, established by CHS and the Group Health Community Foundation, acknowledges a Group Health delivery system team that has made extraordinary contributions to successful research at the Cooperative. The title of the award is significant. Through public service and generous donations, Group Health consumer leaders Hilde and the late Bill Birnbaum have long supported the need to integrate new research into health care delivery.

Toward that end, the annual Birnbaum lecture was instituted in 2000. It gives Group Health professionals and Foundation donors a chance to celebrate and learn more about research that benefits the Group Health delivery system. This year’s speaker was the Center’s own Ed Wagner, MD, who has achieved national and international recognition for his efforts toward improving chronic illness care. The Birnbaum award, newly instituted in 2002, explicitly acknowledges that CHS research does not exist in a vacuum. "We at CHS recognize that collaboration with our partners in the Group Health delivery system is essential to our success as a research organization," says Cherkin.

Center staff were asked to nominate individuals or teams they had worked with who had demonstrated commitment to research as a way to improve patient care. The following five groups were nominated:

1) The Breast Cancer Screening Program nurses for their participation in breast cancer surveillance research;

2) The Central and Eastside gastroenterology teams for their participation in colorectal cancer control and prevention research;

3) The Northgate Medical Center Cluster C team for its participation in the Healthy Steps Program (a program focused on integrating child development into health care);

4) The Northgate Medical Center, Capitol Hill Family Health Center, and Eastside Primary Care Center teams for their participation in depression clinical trials; and

5) The Group Health Physical Therapy Department for its participation in a back pain randomized trial.

CHS scientists voted for one of the five nominees, with the Breast Cancer Screening Program nurses attaining the majority of the votes. While there can be only one winner, the Center subscribes to the notion that it’s an honor to have been nominated!

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The Breast Cancer Screening Program nurses

Group Health’s Breast Cancer Screening Program (BCSP) invites female Group Health enrollees aged 40 and older to participate in mammography screening at intervals of one and two years, depending on breast cancer risk. Early detection leading to a reduction in late-stage disease and breast cancer-related mortality is the program’s ultimate goal. As part of the screening program, women complete a survey that asks about demographics and risk factors related to breast cancer (e.g., family history, age of menarche). This survey is used by clinicians to help with the interpretation of mammograms and by researchers seeking to improve breast cancer care. Data from the survey have provided critical information to help radiologists evaluate their performance and to motivate changes in the way care is delivered. For example, women are now encouraged to undergo screening during the first two weeks of their menstrual cycle when mammograms are more effective because of lower breast density.

Over the last 15 years, the BCSP nurses have not only delivered care through the program centers, but have played a critical role in enhancing the quality of the survey data. The nurses review data with the women as they complete the survey, sometimes identifying and correcting erroneous responses in the process. Also, because of their personal interactions with program participants, the nurses have been uniquely positioned to gauge what is working well with the survey, and what isn’t. For example, the nurses suggested that the question about family history should collect more detailed information about whether breast cancer was diagnosed in a first-or second-degree relative.

"The nurses contributed immeasurably to improving the survey," says Stephen Taplin, MD, a CHS senior investigator and Group Health family practitioner. "We’ve published more than 25 papers based on this data, including crucial work that ultimately improves care." Taplin wishes to acknowledge manager Jo Ellen Callahan and the following BCSP nurses: Ann Asher, Linda Brender, Ellen Jane Canfield, Donna Crosby, Mary Dahlstrom, June Dawson, Priscilla Dicarlo, Joanne Caro Dorschel, Trumaine Greenland, Patti Ann Hurlbut, Caroline Klaport, Linda Marion, Lynette Murphy, Brenda Oneal, Heidi Pelton, Winona Pietila, Mulumebet Retta, Nancy Siburg, Michele Simpson, Lisa Stilwell, Marilyn Vanbrero, Lavana Wood, Susan Woods, and Helene Worsham.

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The Physical Therapy Department

The Group Health Physical Therapy Department, under the direction of Rick Bocko, participated in a National Institutes of Health-funded randomized trial of an intervention for patients with back pain. The collaboration grew out of work that Steve Berry, Physical Therapy Department Manager, and Michael Von Korff, ScD, the project’s Principal Investigator, did together to draft guidelines for managing back pain in primary care settings.

Back pain is a common condition that can lead to personal suffering and large societal costs due to reduced work productivity and increased health care expenditures. Researchers hypothesize that back pain patients who fear that physical activity will increase their pain may avoid certain activities. This "fear-avoidance" behavior can eventually lead patients to become out-of-shape and disabled.

The intervention in the back pain randomized trial was designed to address patients’ fears regarding back pain and support resumption of usual activities. The intervention was delivered by a study staff behavior-medicine specialist and one of three volunteer Group Health physical therapists–Steve Berry, John Maisano, or Bridget Goglia. Over a one-year period, the physical therapists participated in more than 250 study-related visits—all in addition to their regular case load. The extra effort appears to have paid off—initial results suggest that the intervention successfully reduced patients’ back pain-related fears and activity limitations.

Von Korff views this as an excellent example of how collaboration with delivery system staff can enhance research. "The physical therapists’ proactive involvement changed the direction of our back pain research, making our study both more relevant to the Group Health delivery system and more effective in addressing patient needs," says Von Korff. "Their involvement has allowed us to develop a care model that could be fully integrated into existing GHC services for back pain in primary care and physical therapy."

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The Central and Eastside Gastroenterology teams

Colorectal cancer is the second leading cause of cancer deaths and the fourth most common cancer in men and women in the United States. Over the last several years, CHS scientists have conducted research with the goal of either preventing this disease or improving its early detection. Examples of studies include: the Screening Markers for Colorectal Cancer study, designed to identify early, molecular markers for colorectal cancer; the Soy Isofavone study, designed to evaluate ways to prevent colon cancer; and the National Colonoscopy Trial, designed to evaluate colonoscopy screening.

This body of work would not be possible without the collaboration of the gastroenterology (GI) teams at Central and Eastside Specialty Centers. Led by Andrew Feld, MD, at Central and Tom Ylvisaker, MD, at Eastside, these teams play multiple roles in CHS’ colorectal cancer control and prevention research. They schedule study procedures, perform colonoscopies, obtain colon biopsies, suggest operational changes, and encourage recruitment. For example, for each subject in the Soy Isofavone Study, clinicians performed two colonoscopies over a one-year period and took an additional 15 study biopsies at each colonoscopy. "Needless to say, we were quite a presence in the clinic," says Investigator Katherine Newton, PhD.

Summing up this successful collaboration, investigator Meg Mandelson, PhD, says, "The collaboration has been an important learning experience, and has truly exemplified how CHS and the Group Health delivery system can work together to achieve meaningful research results."

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The Northgate Medical Center, Capitol Hill Family Health Center, and Eastside Primary Care Center teams

For the last 15 years, CHS researchers have worked with teams at Northgate Medical Center, Capitol Hill Family Health Center, and Eastside Primary Care Center to improve the treatment of patients with depression. The majority of depressed patients are diagnosed and treated in primary care, making this a logical setting for intervention studies. In the seven randomized trials conducted by CHS over the last 15 years, researchers have focused on pharmacologic and behavioral treatments for depression, as well as strategies to ensure that patients receive adequate follow-up care for their condition.

"Our depression clinical trials would not have been possible without the family practice teams at these clinics," says Elizabeth Lin, MD, a CHS affiliate investigator and Group Health family practitioner. The participation rate among the primary care practices at these three clinics is an astonishing one hundred percent. Providers have referred patients to studies, participated in training sessions, contributed to the content of interventions, consulted with study experts regarding difficult cases, and provided collaborative care with study psychiatrists and psychologists.

Because of the large scale of these trials—2,000 patients randomized over 15 years—it is not possible to name all the people who deserve recognition. "The clinicians are the unsung heroes of our studies," says Lin.

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Northgate Medical Center Cluster C team

The Healthy Steps for Young Children Program is a national research project that integrates child development interventions into primary care. Group Health is one of the sites, with CHS Investigator Robert S. Thompson, MD, the Principal Investigator.

The program, which targets children from birth to age 3, emphasizes the importance of a quality parent-child relationship for the healthy development of the child. One component of the Healthy Steps program is the "enhanced" well-child visit—a team approach that involves physicians and clinic staff, as well as a Healthy Steps Specialist (a CHS staff member). The purpose of the "enhanced" well child visits is to foster a close relationship between parents and providers in addressing child development and behavioral issues.

It’s no surprise that the success of the program and its evaluation depends on the support of the clinicians and staff who provide prenatal and/or pediatric care at the participating study clinics—Northgate and Family Health Care. While project staff are grateful to both clinics (and cluster teams within the clinics), CHS project manager Lynda Tyll, RN, MS, cites the sustained efforts of Cluster C at Northgate as truly extraordinary.

Tyll enumerates several examples of Cluster C’s continuing commitment to the Healthy Steps Project since the program’s inception four years ago. For example, Sallie Dacey, MD, a Healthy Steps "lead provider," has been a consistent advocate for the program, devoting time to attend a four-day training conference in Boston. Karin Madwed, MD, provided educational training on maternal depression to the Healthy Steps Specialist. Many providers and staff have enthusiastically facilitated the program’s implementation and supported the work of the Healthy Steps Specialists. In addition, providers and staff have willingly attended periodic training sessions and many clinicians have given feedback on the program’s content and the best ways to integrate it into practice.

"The sustained spirit of cooperation and participation from Northgate Medical Center’s Cluster C is a testament to their ongoing commitment to this research," Tyll says. Members of the Cluster C team include: Sallie Dacey, MD, Birgit Grimlund, MD, Patricia Kato, MD, Karin Madwed, MD, Lucia Muller, MD, Shauna Smith, MD, Joyce Brown, MA, Janey Sloane, MA, Petra Sporseen, MA, Karla Vernon, MA, Gayle Smith, PCR, Colleen Barker, PCR, Roslyn Latchman, LPN, Pattie Barclay, RN, Nelly Clader, RN, Mary Pat Thorpe, RN, Sarah Matthews, ARNP, and Denise Schaefer, ARNP. Tyll also wished to acknowledge the following former providers of Cluster C: Patricia Boiko, MD, Karl Weyrauch, MD, and the late Carol Folger, MD.

CHS’ close connection with the Group Health delivery system makes it that much easier to fulfill the Birnbaum’s vision that research should lead to improvements in care for actual patients. According to Dan Cherkin, the U.S. Congress and the National Institutes of Health are coming around to this way of thinking by acknowledging that research needs to be more clinically relevant and translatable into practice. This is not a novel concept for CHS. The Center’s unique relationship with its delivery-system partners has paved the way for CHS’ long-standing commitment to "translating scientific knowledge into effective and efficient clinical practice," Cherkin adds.

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